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| Tia has epidermolysis bullosa - known as 'butterfly skin'. | |
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| Topic Started: 16 Nov 2017, 05:13 PM (3 Views) | |
| Sandy | 16 Nov 2017, 05:13 PM Post #1 |
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Four-year-old Tia Foster-Price has a condition called epidermolysis bullosa (EB). It means her mum Anne Marie has to treat her skin and pop her blisters every day - and it stops her running around with her friends. Anne Marie says she thinks: "Is she going to die this year? Is she going to live?" But she hopes Tia might benefit from a pioneering genetic treatment that recently gave another little boy with EB a new skin. Link to the video. |
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1:53 PM Jul 11
